Voices of IBD (5) - Daisy's Story.

Welcome to PART 5 of the Inflammatory Bowel Disease series, where we talk to people from all walks of life with this condition; to give everyone a platform to share their story, and help to raise awareness.



This week we talk to Daisy about her battle with Ulcerative Colitis.



What is your name and age?

Daisy from Coping With Colitis. 25.


What is your occupation?

I’m a marketing assistant for a skincare company.

What form of IBD have you got?

I’ve got Ulcerative Colitis

How old were you when you were diagnosed?

24

About the disease...
What were your main symptoms that led to your diagnosis?

My main symptoms were daily diarrhoea, and not just once or twice a day it could be anything from five to ten times. I lost ½ a stone in a very short space of time and was totally put off my food, I was terrified to eat.

How did you feel when you got diagnosed?



You know what, I was actually kind of relieved when I was diagnosed, I finally had an answer and definite diagnosis to explain everything that had been going on.

Do you take medication , if so, what?

I currently take 2400mg of Mesalazine.

What are your experiences with hospitals? Have you had many stays in hospital, or colonoscopies? Do you have an IBD nurse?

Unrelated to IBD, I hate hospitals. Prior to my colonoscopy, I had never been admitted to hospital. I had never been put under general anaesthetic or anything like that. However, my colonoscopy was ‘OK’ as far as they go. I reacted to the sedative but the team looking after me were great. I also have a very good IBD team who I can call and will usually get back to me within 24 hours.

What seems to affect your IBD the most? What triggers it?

Some of the things that trigger my IBD have been stress, whether that is from work or my personal life. I am a very sensitive person and wear my heart on my sleeve. Also things like fruit juices, fruit, raw vegetables are a no go.

Do you currently, or have in the past, struggled with mental health? If so, what?

When I was 18 I struggled with Generalised Anxiety Disorder, this went away throughout university but it started to come back with my IBD diagnosis – especially at the beginning because I was so overwhelmed.

Do you get support and medication for your mental health?

I have previously been through Cognitive Behavioural Therapy which helped a lot, and I take techniques such as mindfulness to help me now. 

What is your go-to routine for when you are flaring?

My go-to routine is definitely a bath, face mask, hot water bottle, pyjamas and bed! Anything cosy 😊

What do you do to give yourself a break or relax?

Because I work in skincare I often take a long time with my skincare routine in the evening and almost give myself a little facial every night, this really helps relax me and calm me.

What lifestyle/diet/changes have you made to cope with your IBD?

I haven’t had to change too much of my lifestyle, luckily, I wasn’t a big drinker before diagnosis, in terms of diet I have drastically reduced the amount of meat I eat.

What advice would you give to someone who may think they are experiencing early signs?

Go to the doctor straight away, don’t settle for a general IBS diagnosis, push for a stool sample and blood tests right away.

What advice would you give to the friends and family of those with IBD?

Be supportive, try to understand – and if you don’t, just do some research. It will take you 5 minutes but we are the ones who have this for life, so get on board!

If there is one thing that keeps you motivated and focused through it all, what would that be?

I would say the IBD community are amazing, the support of Crohn’s and Colitis UK too – when I feel down about my diagnosis the first place I go to is twitter and seek out fellow IBD Warriors 😊 

What is your favourite quote?

"If it’s not personal don’t take it personally"
 – Dr Murad (the dermatologist of the company I work for)




Thank you Daisy for sharing your story here on BecxBlogs. If you are affected by Crohn's or Colitis; please go to the Crohn's & Colitis UK website for further support and information.

You can find Daisy over on her social media!

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